Armed and dangerous…with information!

I love the internet.  Not only am I finding great resources on thyroid advocacy forums, but I am also able to view test results now from LabCorp without being a slave to my doctor. Yay, interweb.

So my test results came back from all of the bloodwork on Saturday and I’ve had a few days to sift through it all.  I know you are all dying to know what I found.

The bad news is that EVERYTHING came back in the normal range.  The good news is that I know better than to lay down and take it like before.

First of all, it doesn’t look like I have the thyroid antibodies, so that is great news.  No Hashimotos or any other autoimmune diseases appeared to be present.

I ran a ton of thyroid tests, as I mentioned before.

I immediately checked my TSH levels.  Lab Corps range is .45 – 4.5.  Mine came back at 3.75.  Yes, it’s in the normal range.  But, as I found in my sleuthing, the American Association of Clinical Endocrinologists advised the public in 2003 that physicians should be using a smaller range and looking at .3 – 3.0 as a level of normalcy.  Anyone who scores above 3.0, according to the AACE should be treated for hypothyroidism. In fact, they recommend that a patient be treated until the levels fall between 1.0 – 2.0.

When I read this, my reaction was like this:

  1. Read the article
  2. Look at my test results
  3. Scour the internet for references to this article
  4. Look at my test results, double checking that I really am above a 3.0
  5. Get mad.

I have never been given my test results from any of the 6 endocrinologists that I’ve seen in the last ten years, but I remember many of them saying, “oh, you’re 3.whatever, so that’s the normal range.  You’re fine”.

No, obviously, I’m not fine.  I’m mad.

I’m mad that this has been going on for 10 years untreated.  That I’ve been suffering for a decade.  I’ve been thinking that I have a major problem with control over my diet and exercise because nothing ever works for me. I’m mad that I’m so tired all of the time that I often close my door, lay down on the floor, and sleep at lunch- even though I slept 7-9 hours the night before.

I’m mad that I’ve been above these recommended clinical ranges and 6 doctors have dismissed me, despite my insistence that something is WRONG.  They looked at me and said, I can see you are unhappy but then didn’t bother to do anything to help me.

I AM NOT A LAB VALUE ON A TEST REPORT.  I am a human being who knows what is normal and not normal for ME.

And now, I have my labs so I can fight.  I have documentation from a national organization saying I should be treated.

So what next?  I push forward.

I emailed my PCP yesterday and let her know that I received the results (probably before she did) and gave her the link to the AACE press release.  I asked her how she wanted to proceed.

Then, I called the three doctors I’m on the waitlist for and checked my status.  I also let each of them know that I have lab work so I would need a longer appointment.

I’m waiting to hear back from my PCP.  She told me that she was willing to treat me if it came back abnormal.  I guess I need to hear what she has to say after reading the AACE recommendations.

Even if she is willing to treat, I’m still going to meet with one of the specialists, just to get another opinion and ideas on some holistic treatment methods.

The moral of the story is this:  always trust your gut.  Even if you have to go to 12 doctors to be taken seriously.  Even if it takes you 10 years.

Because it’s worth it.  Getting those test results directly gave me a great amount of validation.

I’m not a crazy machine.  I don’t have to feel like a slob because I can’t lose weight or get in shape. My husband doesn’t have to live with my exhaustion hopefully for much longer.

This is where shit gets real, people.  I’m armed and dangerous now.

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